I received a call this morning from Darein's urology surgeon's office stating that the doctor had reviewed the xrays and ultrasounds and found that the densities had moved and were now in her digestive tract and were found moving on the film. It is still unclear what these are but it is now clear that they are not kidney or gallstones. Her kidneys, bladder, and gallbladder look good. He is referring her back to her pediatrician for further follow up. The nurse recommended that maybe we would want her GI doctor to take a look at her and said that the pediatrician might want to do a CT but it definitely was not stones. So now, Darein is getting sick to her stomach weekly and we are back at square one trying to figure out why.
I think that it could possibly be allergies as we have added animals back into our home as Darein loves to be around them so much. I will place her on some Claritin and see if this helps any. I did call her GI doctor to set up an appointment and he will see her towards the end of June. In the meantime, I will work with Darein and the Claritin to try to rule out allergies. I also will call her pediatrician in a few weeks to discuss if she wants to run any tests or not prior to her appointment with the GI doctor. I also want to discuss with her if Darein needs insoles, orthopedic shoes or needs to have her orthopedic doctor who is treating her scoliosis see her and treat her for her flat feet. I did find out over the weekend that her dad had flat feet when he was little and had to have orthopedic shoes so it is genetic and not from her syndrome.
Overall, Darein is doing well with her back brace. She worked up to 4 hours today with it. As we have started the school week, we will start incorporating her wearing her brace in the evening as well as start having her sleep in it in order to increase her hours as needed. Hopefully by next week she will be able to start wearing it to school.
Hope everyone got their work week started off good and have a great rest of the week!
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