It's The American Way

I love our country, I really do but I find myself wondering what we are doing sometimes as nothing seems to make sense. I was in a wreck almost a month ago. I don't want to get into details as I am still dealing with the insurance company but is it so hard to take care of a person's expenses that they incurred as a result of a wreck that your client caused? Just cover my expenses and my vehicle and we can call it done. Why must there be so much aggravation over a few things that will end up costing the company more money in the long run versus if they just took care of what was right and just.
As if this wasn't enough for one's aggravation, I decided to try and file for disability for Darein. She is facing a $500,000 surgery on her spine, surgery on her jaw, nose and other medical expenses and eventually a person's insurance is going to cap out and nothing helps no matter how much you make. Darein was not able to be diagnosed until the age of 10. Therefore, trying to file for disability up to that point was not an option and trying to file after that was still difficult as she has such a rare syndrome and not much of a prognosis as far as what to expect. Therefore, we did the right and just thing by taking care of the bills and expenses ourselves and my husband worked hard, has good insurance and tries to provide for our family to the best of his ability. I am unable to work as I have had to quit to take care of Darein and help her through her many medical issues. So when it has come to a time when we need to have resources to turn to, you would think you could turn to disability. However, that is not the case. We were told today that my husband makes too much money and it doesn't matter how much the medical bills are we still make too much to qualify for those services. We need to go through the process though in order to get a denial letter prior to applying for further resources. So basically, if you don't work, sit on your butt and maybe even decide to consciously choose to be a single parent then you can get all kinds of services. However, if you go to work, try to make a decent living for your family while also trying to balance your children's needs then the government doesn't want to help those who are trying to help themselves. It is just so infuriating and therefore, I call it the American Way. So now it looks as though I get to spend my "free" time trying to round up resources that might help with my daughter's surgeries and medical bills as well as dealing with whatever goes on between me and the insurance company. I would just like to spend time trying to care for my kids. Darein has many medical issues and I want to focus on her and not on acquiring resources to help our family financially with our medical circumstances. I also have a son to concentrate on enjoying his senior year and helping him make the transition to college and taking care of all that that involves. It's too bad that there are so many people as well as companies always trying to get ahead instead of worrying about the common honest people.
After going through all that I have gone through this past week or two, I think I will end up spending the rest of my life lobbying to our Congressmen and Representatives trying to get equal rights for those children who have disabilities. I find it funny that if you are an adult and disabled, then you are granted disability no matter what the income is. However, if you are a child that is disabled then your parents are supposed to be responsible for the astronomical costs of medical care no matter how much you make. It seems as though those that don't work and try to work the system are granted things that should instead go towards hard working individuals who have no control over the circumstances of their disabled child. I am mad that I have to lower my standards in order to get the help that is rightly deserved to my child. I should be able to hold my high standards that working hard and providing for your family is of the utmost importance and will reap great rewards as a value that I teach my children and that they can look at and see great results from. However, it seems as though this day and age you have to lower your standards and figure out how to work the system in order to get rewarded and I am very concerned about the values that this is teaching my children. I will still continue to hold fast to my old fashioned values no matter the outcome but I am definitely concerned about the current and future nature of our United States of America. Makes me understand a little why China is now the new superpower. You would think that we would get a clue somewhere but instead we just seem to continue in the same footsteps as prior that continue to not work.
I am done now with that part of my story and ready to move on now that I have said my peace. I received a call today from Kansas City stating that there appears to be kidney or gall stones that showed up on Darein's xray. We will repeat an xray in two weeks and then if they are still there then we will proceed with an abdominal ultrasound and decide what needs to be done from there.
From here we press forward and sorry for the not so uplifting note today but I do get very frustrated with things that are socially acceptable this day and age. I will continue to hold fast to my values and do what I think is morally right for me and my family no matter the consequences.