A Puzzle With Many Pieces

Darein has been getting sick about once a week for the past month. Finally, after getting sick once again this past week I decided that she might have a kidney infection as this has caused an upset stomach for her in the past. I called her urologist here in Springfield to see if we could just come in for a UA or if she needed to be seen since it has been over a year since we have seen that doctor. We were instructed that she would need an appointment but that she could be seen that day. Therefore, we got ready and I took her in for her appointment expecting to see the doctor and to get a UA. Upon arriving and being taken back to the examining room, the nurse came in to tell us that she was new and the doctor had told her that since she cannot help Darein and had referred her to Kansas City that she did not need to see Darein at all. They did agree to go ahead and do a UA and would send it to Darein's pediatrician and to her urology surgeon in Kansas City at the Children's Hospital. Darein got a UA and we left.
We decided to meet her dad for something to eat on the other side of town on our way home. However, on our way to meet him a lady's vehicle slid on ice and hit my vehicle. We now had to take care of the accident and luckily Shane met us over there to help through the process.
Later, I received a call from the Springfield urology office stating that she had faxed the results to both places and was asking them if they wanted cultures done. I spoke with the Kansas City office the next day to see where we were at on things and was told that the initial lab looked like she probably did not have an infection and maybe just some bacteria but she did let the Springfield office know to go ahead and run cultures. The following day she called to state that the cultures came back showing that she does have an infection and so she would talk to the physician assistant later in the day to see how we wanted to treat this. I gave her some background information also stating that it had been over or about a year since Darein had seen the urologist there and that we were supposed to be working on Miralax and Benefiber daily but were having troubles remembering this daily and fitting this into our lifestyle. I also told her that he wanted her to have another KUB xray and a cystourethrogram within the year and that if he wanted to see her then maybe we could have all of these tests done in Kansas City and he could see her after the tests for the results. She thought this was a good idea and said that she would get back with me on how to proceed. She called later that day to tell me that the physician assistant was out of the office for the day and wanted to know if we could wait until the following day when the doctor would be in. I told her that was fine and that Darein was feeling better so we would continue to wait.
On Friday I received a final phone call from Kansas City stating now that the doctor looked at the culture and that it does not show that she has an infection but instead more of a yeast. She couldn't explain much to me about this other than it was nothing to be concerned about. She stated that the doctor wants to change Darein's Miralax and Benefiber routine to every other day but she needs to increase the Benefiber to three times a day. I have to call on Monday and make sure that I have that right for sure :) Anyways, she also said that he wants her to get a KUB xray this next week and get her bowels working regularly so that he knows how we are going to proceed from here.
Looks like we are back at square one, still with no answers and still trying to figure things out with her left kidney reflux as well as her spastic bladder. It has been approximately one year since we discovered the left kidney reflux and we are still no closer to any kind of treatment really being taken care of. On the upside, we did receive news this past week that Darein's bone age came back age 13. She is 15 and so this means that she still has a couple of years to continue growing. Her projected height is about 60" or 5' give or take a couple of inches which is our ideal height for her based on my height. As long as she reaches about 5', then no human growth hormone injections will be necessary which Darein definitely does not want to undergo.
Needless to say it has been an eventful week but I am trying to continue to take one day at a time and trying to make forward progress every day. Hope next week gets better and we continue to make good progress on life. Have a great week everyone! I know life can be tough but try to find one good thing that has happened that day and build and focus on that to get you through to better days. You can't do anything about the bad things that have already happened and you can't stand still in life until decisions are made that are out of your control so it is important to find what you can control and make the best of it, even if it means just catching up on some much needed rest :)