It has been quite a week this week. Damein started his Strafford Wood Bat Tournament which has taken up most of the week. He has had a baseball game almost every night this week. He has done well and they are undefeated as of tonight. They get to play for the championship Monday in Conway! I am so very proud of how well he has done throughout the week. He has pitched great and his on base percentage has got to be incredibly high as he is on base the majority of the time either via walks, hit by pitches or hits. He has also been hit more this season than any other kid on his team. He is getting a little tired of that :) One of the dad's took a few pictures of Damein and they turned out great! The Buffalo Reflex has had something to say about him every week now for about the last 3 weeks. I have been cutting the articles out and saving everything for his scrapbook!
Darein has had a week full of ups and downs. She started the week off by finding out that she has scoliosis. Her doctor's office from Kansas City called and said that when her xray of her abdomen was done the radiologist noted that she had scoliosis to the left. They suggested that we contact her pediatrician for further recommendation. They then proceeded to let us know that we need to get more strict with her Miralax and Benefiber regime so that she is regulated better and we will call back in 3 months and let them know how this is progressing. We will continue to wait to do anything about her left kidney reflux until we have her regulated better and then will proceed from there. She is scheduled to see an orthopedic doctor on Tuesday so that we can find out the severity of her scoliosis and if we will follow up with observation, bracing or surgery. Me and Darein are a little worried that she might have to have a brace which neither if us want for her. She had curvuture of the spine when she was a toddler and they chose to just watch it at the time. Unfortunately, with all of her other medical issues we didn't feel as though this was a pressing issue to continue care with and soon forgot all about it. Therefore, our concern is that it has possibly gotten worse. Darein is and has been having some back pain and with her recent diagnosis of chronic regional pain syndrome it is difficult to decipher whether her pain is from that disease or from the scoliosis and if it is severe enough that they will try to treat or not. At this point, we will wait to see what the specialist says on Tuesday.
On the positive part of life this week, my son tells me that he is dating the preacher's daughter which is good. She is very sweet. Damein however is not going to Prom this Saturday and I have to say I am a little disappointed. I was hoping to see him all dressed up in a tux, he is so cute! However, he has chosen not to go for whatever reasons and is choosing instead to have a date night with his girlfriend which is good too :)
Darein was asked several times on Wednesday by her Shop teacher to please enter the Industrial Technology Competition at MSU as she made a bench with a horse on it. She agreed to do this and brought home the permission slip. She ended up going today and qualified to take her bench to State Competition! 9 kids from her school made it and she is super thrilled about it. She even got a medal and a ribbon for it. Me and her dad are so proud of her. She doesn't get many opportunities like this so when she does and she does so great it's a really big deal!!!
I also forgot to mention that Damein took a test, I am assuming in Finance class and ended up scoring in the top 20% of the nation! It was a Financial Capability Challenge and he is being recognized by the U.S. Department of Treasury. I called the phone # on the consent form and it went straight to the U.S. Department of Treasury in Washington D.C. I was told that his ranking, name and school would be placed on the website for recognition and they would also send out something to the local media if they chose to spotlight those students and their schools. So it's kind of a big deal and we are very proud of him. 76,000 students participated so Damein doesn't think it's that big of a deal and says him and about 16,000 other students received this reward. I tried to explain to him that it was still a big deal because it was nationwide but he is staying humble on this one. I kept the top portion of the consent form though so that he has it for his college applications.
Anyways, it was kind of a big week so thought I would go ahead and write. Will probably write again next week once we know how things turn out at Darein's orthopedic appointment.
Take care and I wish everyone well :)
Friday, April 23, 2010
Friday, April 16, 2010
Baseball Season Has Begun
Well, it is official! Baseball season has begun and it truly is my favorite time of year :) There is just something wonderful about sitting out in the sun at the ballfield, especially when your kid is playing.
Damein had such a rough time last year after he came down with Steven Johnson Syndrome right before baseball season. He managed to lose most of his coordination for the first of the season, the coach was hard on him and he was feeling pretty hard on himself about his ability. He chose not to play Legion baseball after he got demoted from Varsity to Junior Varsity during the school year. He took some time off after the school year and then decided to pick it back up this past Fall just for fun. He played well in the Fall and we were hoping it would carry over this following school year and it definitely has. He has one of the highest batting averages on the team, though I couldn't tell you what it is just that he is doing very well. He hit a homerun this year, which is the first in a really long time. He is playing left field, shortstop and pitcher this year and is playing each position above average. He has had 2 errors the whole season so far and pitched an entire 7 inning game by himself and got the win. He came in this evening to pitch the 6th inning. We were winning 5-2 and he got all 3 batters out. We then went back out to hit at the bottom of the 6th inning and ended up scoring enough for them to call the game. Game ended with a score of 12-2. He is looking forward to playing Legion baseball this year and to his tryout on June 7th at MU S&T Rolla. He is having fun and looks very comfortable and confident out there. Very refreshing :)
We sent Darein's xray results to Kansas City but have not heard anything back yet. I did talk to her pediatrician and evidently she had lots of stool that showed up so I had to call her urology doctor's office in Kansas City and explain to them that I had had surgery, then got the flu and she had the flu as well so for the past month we had not had Darein on a regular basis of Benefiber and Miralax every single day. I assured them that I would go ahead and get her started back on this right away and understood if we needed to repeat the test in another 3 months. They stated that they would pass this information on to the doctor so that he could make that decision.
Unfortunately, the medicine regimen that Darein has to go through on a regular basis can be a bit much for the both of us. Darein takes her medicines in the morning but of course she can't do it on an empty stomach. So she eats breakfast but we seem to have a hard time trying to fit her Benefiber in in the morning. Her doctor wants us to put it in her food as he feels this is the most effective method for her. Unfortunately, it is a powder that you mix up in her food. This is a little difficult if she has cereal as she has to make sure to drink all of the milk to make sure that she gets all of the Benefiber. If she has eggs or pancakes, then these things are impossible to mix with Benefiber. So we usually forget about it in the morning. I would try her Miralax in the morning which is also a powder but this goes in her drink except for the fact she states if she takes this in the morning she ends up with diarrhea. It is too harsh on her stomach for her to take both in the evening but that seems to be what ends up happening most of the time. She ends up taking her Benefiber mixed in her mashed potatoes at dinner and then when she takes her nighttime medicine, before bed we give her the Miralax. We just have to remember to start her medicine regimen 30 minutes to an hour prior to bedtime so that she has plenty of time to drink her drink.
Anyways, hoping we can come up with something that works better for the both of us and still meets her doctor's requirements.
I am healing well since my gallbladder surgery and am finally doing quite well. My scars are healing nicely and I have now managed to lose 26 lbs. over the past year and a half since I have quit my job!!!! I still have a long ways to go but I am well on my way and quite excited about my progress in this area.
I hope everyone is having a wonderful Spring!!!! Take care and God Bless :)
Damein had such a rough time last year after he came down with Steven Johnson Syndrome right before baseball season. He managed to lose most of his coordination for the first of the season, the coach was hard on him and he was feeling pretty hard on himself about his ability. He chose not to play Legion baseball after he got demoted from Varsity to Junior Varsity during the school year. He took some time off after the school year and then decided to pick it back up this past Fall just for fun. He played well in the Fall and we were hoping it would carry over this following school year and it definitely has. He has one of the highest batting averages on the team, though I couldn't tell you what it is just that he is doing very well. He hit a homerun this year, which is the first in a really long time. He is playing left field, shortstop and pitcher this year and is playing each position above average. He has had 2 errors the whole season so far and pitched an entire 7 inning game by himself and got the win. He came in this evening to pitch the 6th inning. We were winning 5-2 and he got all 3 batters out. We then went back out to hit at the bottom of the 6th inning and ended up scoring enough for them to call the game. Game ended with a score of 12-2. He is looking forward to playing Legion baseball this year and to his tryout on June 7th at MU S&T Rolla. He is having fun and looks very comfortable and confident out there. Very refreshing :)
We sent Darein's xray results to Kansas City but have not heard anything back yet. I did talk to her pediatrician and evidently she had lots of stool that showed up so I had to call her urology doctor's office in Kansas City and explain to them that I had had surgery, then got the flu and she had the flu as well so for the past month we had not had Darein on a regular basis of Benefiber and Miralax every single day. I assured them that I would go ahead and get her started back on this right away and understood if we needed to repeat the test in another 3 months. They stated that they would pass this information on to the doctor so that he could make that decision.
Unfortunately, the medicine regimen that Darein has to go through on a regular basis can be a bit much for the both of us. Darein takes her medicines in the morning but of course she can't do it on an empty stomach. So she eats breakfast but we seem to have a hard time trying to fit her Benefiber in in the morning. Her doctor wants us to put it in her food as he feels this is the most effective method for her. Unfortunately, it is a powder that you mix up in her food. This is a little difficult if she has cereal as she has to make sure to drink all of the milk to make sure that she gets all of the Benefiber. If she has eggs or pancakes, then these things are impossible to mix with Benefiber. So we usually forget about it in the morning. I would try her Miralax in the morning which is also a powder but this goes in her drink except for the fact she states if she takes this in the morning she ends up with diarrhea. It is too harsh on her stomach for her to take both in the evening but that seems to be what ends up happening most of the time. She ends up taking her Benefiber mixed in her mashed potatoes at dinner and then when she takes her nighttime medicine, before bed we give her the Miralax. We just have to remember to start her medicine regimen 30 minutes to an hour prior to bedtime so that she has plenty of time to drink her drink.
Anyways, hoping we can come up with something that works better for the both of us and still meets her doctor's requirements.
I am healing well since my gallbladder surgery and am finally doing quite well. My scars are healing nicely and I have now managed to lose 26 lbs. over the past year and a half since I have quit my job!!!! I still have a long ways to go but I am well on my way and quite excited about my progress in this area.
I hope everyone is having a wonderful Spring!!!! Take care and God Bless :)
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Be sure to check out the website and get your copy!
This easy-to-use software helps you eliminate system crashed, prevent coputer problems, and restore your system to a healthy state
Key Features:
-Supports Windows XP/Vista/7
-Eliminates system crashes, freezes and slowdowns
-Automatically identifies and repairs common Windows problems
-Fixing registry errors will speed up your computer
-Eliminates BSOD (Blue Screen of Death)
-Cleans the registry to fix Windows errors and crashes
-Speeds up boot up time
-Reduces the size of the Windows registry
-The automatic backup creation of the repaired registry entries
-Improves your Windows PC's overall performance and stability
-Reduces the amount of time it takes your system to boot
-A simple, user-friendly interface with which you can safely compact the registry
-Prevents registry corruption by building a fresh copy of the registry
-Identifies over 50 different types of junk files
-Speeds up hard drive searching performance
-Frees up valuable space on your hard drive
-Boosts speed of Windows
-Runs much more quickly than others in its class
-Regains plenty of disk space
-Finds and deletes duplicate files - music, video, documents, application
-Frees up your storage space and increase computer performance
-Extends internal system uninstaller with features to find and delete left traces (e.g. registry keys, folders, etc.)
-Improves your Windows PC's overall performance and stability
-Reduces the size of the Windows registry. It results in faster and more stable PC performance
-Frees up valuable space on your hard drive taken by leftovers
-Full control of the programs that are loaded during Windows startup
-Add/remove/edit startup items
-Task scheduler configurator
-Deletes Internet History
-Deletes Temporary Internet Files (Cache)
-Deletes all the Index.dat files
-Deletes Cookies
-Deletes Forms Autocomplete
-Empties Drop-down address bar
Be sure to check out the website and get your copy!
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